Category Archives: Chiane’s Diary
Good evening everyone!!!
It has been a long time since I last updated my diary!
My brother and I have spent a lot of time together and he is my best friend!!!! I love him so much!!! It is so nice that we get along do well.
My hair has grown back but I still have a lot of bold patches on either side of my head. The hair won’t grow back on the bold patches. For now, I’m growing my hair to cover up the bold patches on my head.
My brother and I sitting on a motorbike in a restaurant! We found out wild side and daddy is getting more grey hair each day!!!! Haha!!
My little brother and I are playing!
Last week was my first day back at school!!!! I was so excited!!!!! My first day back at school in 2 and half years!!!
My little brother started school this week!!!
My hair can make a little ponytail!
My brother and I walking to school.
I showed my little brother where we have to go into school, where the toilettes were, and I had to show him everything.
Estian at the school playground.
His first day in big school.
He was so happy to start school!
Thank you everyone for all your prayers and help through the last 2 and a half years. It feels so good to get here where I can be back in school! Thank you to everyone that has supported me through my fight against cancer. I got 4 more years to go before I am cancer free. I will keep on fighting the good fight!!! It is so nice to have a life back where I can finally go back to school.
Lots of love
I arrived at school for my first day back at school. I’m only going to school half days, I get private schooling at home in the mornings and go to my main school in the afternoon.
I was so excited!
I arrived at my class. I was so nervous when I got to school!!!!!
I’m glad I’m back, everyone is so friendly and helpful. I love bring back in school!!
I got my MRI results yesterday and my cancer is still gone. I’m so happy that my cancer has not come back!!!!!!!!!
My grandmother came to England to visit me. I haven’t seen her in 3 years and I really missed her so much! It was the best present ever to see my grandmother!!!!!!!
My grandmother, me and my brother when got my grandmother at the airport.
My grandmother was so much fun! She did everything with me and my brother. We played a lot outside and we laughed a lot.
My grandmother and me building a puzzle.
We did lots of arts and crafts work.
My grandmother came with me and sat with me when I had my MRI scan at hospital.
My grandmother loves flowers. My grandmother and me plant flowers and gave them water! I promised my grandmother I will take care of the flowers and water them when they need water.
I really loved working in the garden with my grandmother. We has so much fun!!
Schooling is going well. I do find some things really hard to do, but I do not give up and I will keep on doing something until I get it right.
My hair are growing back. I have patches on my head which have no hair but I am ok with it. I think it looks cool. Hahahahah!
Thank you for everyone for all the presents. I was really spoiled with present from friends and family that my grandmother brought with her. Thank you to everyone still doing fund raising. I still follow everyone on Facebook that are busy with fund raising.
Thank you for everyone still praying for me. I really appreciate all the prayers and love that everyone has shown so unconditionally.
Lots of love
I am working very hard. I miss my old school, and I miss my school friends!!! I am so determine to go back to school!!!! I am still doing a lot of physio, and I exercise every day!! It’s too cold outside, so I got a mini trampoline inside the house. I exercise every day, I eat all my food, I take all my homeopath medicines, I work very hard at my school work!!!
My hair is slowly growing back, but I do have lots of patches on my head that is still bald and smooth. I got a patchy head!!! Hahahahahah!!!
However!!!!! I can hold 2 hair clips now in my hair!!!!!! I’m so excited!!!!!!!
I am so determine to go back to school!!!! My little brother turns 4 in April, which means, he is going to school in September when the new school year starts! My goal is to be ready by September to go back to school, when my little brother starts school!!! I will not stop! I will do what ever it takes, and I will work harder if I have to! Someone has to take care of my little brother when he starts school, show him where the toilettes are, the play rooms. He will have no friends in the beginning!!! I have to look after him and take care of him when he starts!!
I am very motivated and I will stay positive! Thank you everyone who is still helping with donations!!!!!!! Lots and lots and lots of love!!
Good afternoon everybody!!!!
We had lots of snow during January in London. I loved it!!! We played a lot in the snow!!!
One of my best friends, Tenille visited me a few times this month. I am so happy, because Tenille is one of my best friends. She hasn’t treated me any differently since I was diagnosed with cancer. This was one evening Tenille visited me.
Tenille, my brother and I playing in the snow.
Me and Tenille at my house! Tenille is always nice to me!! She even told me that my hair looks cool!!
The 26th of January was my birthday, and I had 2 friends over for my birthday. In the morning my brother helped me open my presents.
In the afternoon my friends came over. Tenille and Alessia. Alessia is also a very close friend of mine!!! My brother wanted to be a fairy! Hahahah!! He borrowed one of my dresses and I wanted to dress up as a nurse!
Merry Christmas everyone!!!!!!!!!!
Yesterday is history, tomorrow is a mystery, but today is a gift!
I am living everyday as its a gift, because that is exactly what it is!
Wishing you and your family a fantastic Christmas.
I am back home! My operation went very well today. The “Dacron cuff” is used inside the body close to the heart with the Hickman lines to prevent them from pulling out. Because we have Hickman lines for so long, the tissue sometimes grows around it in the vein, and removing it if the tissue grew all over it is dangerous. Then they leave it inside your body and you have it for life!
Daddy and mommy was worried that my “Dacron cuff” would not come out. It did!!!! Everything came out and the doctors did good! I feel much better. I ate and drank water and I feel a little brushed and soar, but I feel very good.
It is strange not having my wigglies anymore. They were part of me for so long, getting cleaned every week to avoid infections. It will be strange not to feel them.
Zoe was my very first nurse the day I arrived in Gosh a year and a half ago, and she was my nurse today taking care of me on my last formal day at GOSH. Now it’s only scans every 3 months. No more weekly bloods that’s needs doing etc.
Zoe is so kind and friendly, and she gives the best cuddles ever! She use to call me her shadow because I followed her everywhere last year when I had 2 brain operations. >;
This was taken just before I left hospital today, after my operation.
No more Hickman lines! It will take a week for the hole to heal and then I can play rough again with my brother. I was very happy at first….because I can go swimming soon, and take a bath like normal people do. I can’t wait to have a shower!!! But then I got very sad…
I realised my wigglies was helping me get better, protecting me from getting constant injections. They helped me get my medicines, chemo, bloods, and in many ways, it was my lifeline in hospital. I got very sad because I know I will miss them at first, like a tooth I loose. It takes a few days to get use to it.
This is a good day. I am sad, but I know the fact that my wigglies came out means I’m heading in the right direction.
Thank you everyone that has been praying for me! Everyday is a beautiful day. I appreciate everyday and enjoy it to its fullest! Last year I didn’t know if I would see another Christmas. Tonight when we left the hospital everyone outside walking past looked like they were in a rush to get home, getting cold and looking grim. I told daddy to stop for a second. We all stood there for a few minutes, closing our eyes feeling the crisp cold wind on our cheeks. Everyone rushed past us in the street, and we just stood there feeling calm, feeling the cold. It felt so good knowing I could feel it…I am alive and I am still here…it’s still early days, and many challenges are ahead of me, but I will stay positive and make the best of each day…cold weather or not!
Lots of love.
Good evening everyone.
My wigglies are coming out on Friday! I’ve had them in for a year and 5 months!!!
I can’t wait to get them out! I just want to have a normal bath and not be covered in cling film every time I have a bath. My Hickman lines (wigglies) are connected to my heart and were used to give me chemo, and lots of blood transfusions, medicines and to draw my blood.
Because my blood are so good, daddy spoke to the doctors to remove them and they agreed! I’m so excited!!!
My blue wigglie I called Max, and the red wigglie I called Ruby! I will say goodbye to Max and Ruby on Friday!
Soon I can have a normal bath, or sleep on my tommy again, or go swimming, or so gymnastics!!!! I’m so excited!!!
Good morning everyone.
On Monday I went to 10 Downing Street with Estian.
As soon as we got inside Estian took a silver Christmas ball off the Christmas tree!!! Hahahahah!!!
I met Nicole Scherzinger, one of the X Factor judges. She was sooo friendly and nice to me!!!
Estian was so funny. She had her hands full with my little brother! Hahah!
Estian had a lot to say to Nicole and she was laughing so much at Estian! my brother was so funny!!!
She told me to stay strong and to continue fighting my cancer.
And she said I looked beautiful!!!
I then met the 3 X factor finalists.
Me and Christopher Maloney
Estian gave Jahmene Douglas the Christmas ball he took off David Cameron’s tree! Hahahahah!!!
I then met the Prime Ministers wife, Samantha Cameron. She loved my dress.
I then met the Prime Minister David Cameron.
I then met the Prime Minister David Cameron.
There was so many cameras in the room flashing so much we didn’t get a beautiful picture. David and I.
It was so nice to see 10 Downing street and to meet so many people.