Message Board

We receive a lot of emails from people and we love to hear words of encouragement from all over the world. Please use this space for your messages .

We will most definitely read your comments but unfortunately we will not be able to reply to all of them.


Chris, Andia, Chiane and Estian

  1. Good day,

    Pray you all along with Chiane And all are well. Please update how are both children doing. Please give us any new updates.

    I’m not sure whether you are aware of the CMMRD European Consortium

    and BMMRD Consortium

    Always in our thoughts.


  2. Hi I came accross your page while searching the web for sPNET my daughter Emily just reoccured for the 5th time with sPNET. She was first diagnosed 11/2014 at age 4, the tumor came back a second time just 3 weeks later. She did the Head start 2 protocol at CHLA in Los angeles, she also did 30 rounds of radiation with no side effects even testing gifted almost 2 years after treatment. Just 1 year 11 months after she was done, she had a seizure and we found out she had relapsed, she had her 3rd brain resection and started on a trial called ReMatch with the uniceraity of florida. 4 months after her 3rd resection we found out she reoccured for a 4th time, her tumor bled and was in the PICU, she jad surgery January 2018 and was on track to finish her trial. Well just under 2 weeks ago we found out the tumor came bck more aggressive and we have had nontreatment for almost 2 weeks. I dont know what to do, where to look. Please email me at I would love to be in vontact with you.

  3. Thinking about you all still. You all have much love here in Kentucky.

  4. Thank you for the update. You don’t know me at all, but I have followed your story since the BBC documentary all those years ago. Your devotion, love, and hard work really touched me. Sending love from London. All the very best for Chiane, she’s wonderful. X

  5. Ms Bernice Joseph

    Hi again. Sorry, but I meant at Debohun school… Not Wilbury.

  6. Ms Bernice Joseph

    Hello Chris.
    My name is Ms Joseph. I used to work at Wilbury and Chiane was in my dance club. We put on a show at the Millfield Theatre. She loved being with the other dancers and on stage . I also taught her in a Year 1 class.
    I just wondered how she is doing. I often think about her as despite everything, she used to smile so much.


    • Our Butterfly Girl

      Hi Ms Joseph
      Thank you very much for your message. I am the web site administrator that helped Chris setup the website. I have lost touch with Chris and family for quite some time now. I will send Chris a message to see if he has time to write an update.
      Kind Regards

  7. Are there any updates on Chiane? How is she doing? Hope all is well.

  8. I keep on popping on here for an update as there isn’t anything for over a year! Hope things are going well and we get an update soon

  9. Hi, is there any update on how chiane is doing? I’d love to hear how things are going:)

  10. I often come by this website to see if there are any updates on Chiane! Iwould love to know how she is!

    • Our Butterfly Girl

      Hi Amy
      Thank you for checking in. The last time I spoke to Chris he said Chaine is doing well. I will get in touch with and ask him to do an update.

  11. I’ve been following chiane’s story since the beginning, what an amazing little girl. Would love to know how she is. Hope she is thriving and doing well.

  12. Hi. I think about Chiane often and wonder how she is doing. I hope her results are still coming back clear and she is happy.She is very lucky to have such wonderful parents and brother. I would love to hear how she is doing. kindest regards Shane, Sydney, Australia.

    • Our Butterfly Girl

      Hi Shane

      Thank you very much for your message. I look after Chiane’s website. I will be in touch with Chris soon and I will give him a nudge for an update. It is lovely to know that she is not forgotten!

      Kind Regards

  13. Hello Chris and family,

    Pray all specially both your children are well & thriving successfully in life. You haven’t posted any new updates in a long time specially any new news /updates on genetics side.
    Here is another family dealing with CMMR-D MHS6 mutatation. They posted a in their post.

    You might check with your Dr’s before you proceed. Hope this info be of any help to your family.

    Will be waiting for updates from you.

  14. Dear Chris ,Andia ,Chiane and Estian. It was such a relief to see your email and read all your news.
    I am just so happy that Chiane is doing well and Is a cheerful, loving little girl with red cheeks . I was sorry to hear about your mother.She looked a very lovely lady and I can imagine Chiane is sad as she looks like her grandmother and as you said they were very close.
    Perhaps she can make a timeline about her with pictures , photos and memories. is free to make one timeline. I have mine on there as it is my son’s site.
    Time allowing for anything more than the huge rota of events already undertaken, allowing. Just really happy and so proud of you all in your difficult and complex world kept afloat by love and perseverance.
    Goodnight and sleep well.Love Mary Kearns xx

  15. Hi rob, if you want to add me on Facebook i can introduce you to the group, I’m under Jo gunner live in Swansea in Wales . Glad I found the group as its such a rare tumour it’s great to be able to share information. I’m so glad to hear your son is doing well, best wishes he to u and your family. 🙂

  16. Hi rob if you look on Facebook for Pnet the organisation should come up. Add me as a friend if you like and I can introduce u to the group. Thank you for your lovely message glad your son is doing well that’s fantastic. I’m so glad I found the group as its such a rare tumour it’s great to share information . I’m under jo gunner on face book . I live in Swansea in Wales .

  17. Hi Chris, hope you and the family are dong well . I don’t know if you remember talking to me last year, my son Dylan has suffered with a spnet, and last year we had the devastating news that he had relapsed. I contacted you and we spoke on the phone, you sent me some very useful information , a huge thank you for all your help. Dylan is doing really well considering , we had a second opinion and Dylan had surgery in January, and he has been doing well on chemo ( etoposide) which hAs now stopped.his last two scans are looking good . I just wanted to let you know that I have found a pnet group on Facebook and they have a support group for anyone affected by pnet, I was wondering if you would be interested or could pass the information on to anyone you know affected by pnet. It be great to hear how you are all doing , please keep in touch and let me know about the group and I will forward you details. Love to you all and best wished. Joann and Dylan. Xxx

    • Hi Joann, I’m very happy to hear of the clear scans. Your thoughts are with us and pray for continued good scans and good health. My son, Jacob was diagnosed with SPNET in April of 2012, and so far he has been doing well. If there is any way to forward the Facebook support group you mentioned it would be so very appreciated. There is no one here in Canada we know of that has a child with SPNET and its great to give support to others. Wishing you all good health, Rob and Jacob.

  18. Hi Chris and Chiane, hope you are doing well? Please can you update us all as I check back here regularly for updates and I believe you have had your next scan and hope that the results were good!
    Hope to hear your next news

  19. Dear Chris , there has been no news for a long time.I guess you may be away in Germany.
    I hope Chiane and Estian are well. Please write soon.Always in my thoughts.Love
    Mary Kearns

  20. Dear Chiane, I was so glad that your last scan was cancer free and that your beautiful hair is growing into a ponytail .You look so pretty with your clips ,ribbons and slides. I hope you have enjoyed your friendships at school and are doing some of your lovely drawings.
    I think of you often. A bright star sending out colourful waves to heal those who suffer and need inspiration from a person with such courage and dignity. Hold onto your inner sunshine , it is there in every photograph .I wish you the very best and pick some Spring flowers to put in a vase . Maybe you can draw a picture and put it on Facebook for everyone to see. I love flowers and trees and cloud watching of course. Keep happy .Much love Mary Kearns (artist Grandma)

  21. Michelle Kessler

    I saw the story of your cancer journey and I hope that you continue in remission. Chiane, you are such a brave little girl! And you have such great support from your parents! You are in my thoughts and prayers.

  22. Dear Chiane,
    Glad you enjoyed Disney Land! I went last year with chase farm and Guess what! I went with Polly too! I made her go on all the rides. Hahaha!

  23. I am so happy to read the most recent update. Wishing you a happy hospital (and line) free christmas 🙂 With love Vikki from Post Pals

  24. Thinking of you – looked you up after re-watching the bbc doc. Have experience of paedictric oncology wards and sadly not a good outcome. Delighted to hear your lovely daughter is doing well. 🙂 Wishing you all the best x

  25. Aunt Barb from Texas

    Wow! You look like a real fairy princess! I am so glad you posted so many pictures. I am looking forward to meeting you when you come to the United States. Love you! Aunt Barb from Texas

  26. That’s absolutely fabulous news Chiane!!! To see your smiling face was an absolue pleasure and I’m so glad that the cancer hasn’t returned.

    Martha Coleman (Ashmole Gymnastics) x

  27. The best news I have heard in a long time! me and my family are so very happy to hear of Chiane’s positive results!
    Wishing you all a very happy christmas and an even better new year! we will continue to have you in our prayers and thoughts every day xxxx

  28. hey miss superwoman so glad to hear ur cancer free xx

  29. hey little superwomen glad you ok and been having lots of fun just dont go clim
    bing on stuff hehe i know i call you little supper women but you can not fly trust me lol

  30. isobella hill 11

    you look lovely with Rapunzel you are a very lucky little girl to be able to go to kengsington palace

  31. It is so nice to know that Chiane is doing so well. Little Skye is also doing well and out thoughts and best wishes are with you all. Xxxx

  32. Morgane Monjauze

    Chiane, your post made me realize
    That you are amazingly brave! Believe in yourself!!
    Your blonde hair was beautiful but
    You know being pretty on the outside isn’t as Important as being pretty on the inside! And guess
    What you are SO SO pretty on the inside
    Chiane! 🙂
    And I think you are pretty on the outside too!
    I like your brown hair! 🙂
    Keep up the bravery sweet girl!
    I’m praying and hoping for u with all my heart!
    All my luck,
    Morgane xxx

  33. Hi Chris,

    Our little boy Ben age 5 was diagnosed in nov 2011 with spnet, we have just finished the milan protocol at alder hey, when we watched the gosh programme we could’nt believe what we were watching, so rare we thought we were the only people on the planet who had a child with this, if you would like to contact us for any reason please do so by email

  34. hey super woman glad you have no cancer hope you are well with in ur self keep it up you little fighter xx

  35. Steve McMonagle

    Hi Chris,

    My names Steve and I have a four year old daughter called Karis who was also diagnosed with a SPNET April 2011 when she was three. Me and my wife Angela are so pleased that Chiane is cancer free the same as our Karis. Your the only other parents we have heard of whos child has SPNET. As we are also under gosh and we live in Essex our paths may of even crossed on our many trips to safari, lion and elephant wards. We watched the GOSH programme that your family was on and we have only just found Chianes web site. Like you say so little is known about this that it may be good to get in touch with each other, not just to share information but to be able to talk to someone else in the same situation.
    Our thoughts are with you and your family as we know this effects everyone. Chiane is a very beautiful, and brave little girl.

    My Email is
    Hope to hear from you soon.


  36. Hi chiane,
    i am so glad that there is no cancer at the moment! you have 100 times the amount of bravery i would have!
    you are so pretty on the in and out. you are one of the bravest girls i know! and since you have that courage you can struggle past anything!
    keep it up!!! 🙂 your parents love you so much and they are doing everything they can for you!
    lots of love,
    Morgane xxx

  37. Dear Chiane , I first heard about you when I watched the programme on television about Great Ormand Street Hospital. Your face was so full of intelligence and beauty that I wanted to know how you were getting along. I am an artist and make pots and figures I also have a horrible illness. I really like your drawings and the imaginative charts you have made to mark all your experiences. I love the videos your daddy and mummy have made , especially the one with you dancing. You have so much grace and pride. I saw you dressed as a princess and even without your hair you shone as a star in the night sky bright with courage and humility. You have wonderful parents and a dear brother. I hope you get so strong that you can dance all over the world and make people happy. Just knowing about you has given me such a sense of what it means to struggle and yet be not defeated. Lots of love to you and your family. Mary Kearns

  38. Hi, I am a teenager from England and am going to do the race for life and donate my fundraising money to Chiane, I was wondeering if there were any tshirts or clothing for me to wear to promote the cause and gain as much money as possible? Thanks, all the best Chiane and all my love and prayers are with you always xxx
    Amy xx

  39. fantastic news little lady…..continuing to send you blessings wishing for more of the same results xxx

  40. Chris,

    Hello my friend. It is truly great news to hear that your last meeting went so well. I continue to keep you and your family in my thoughts and prayers. Stay brave and faithful. I miss our chats, but will stay in touch. God Bless.

    Scott (not so Dreaded)

  41. What an amazingly brave little girl……I can not imagine what you have been through. Truly inspirational family. You will be in my thoughts. Thinking and praying for Chiane. Xxxxxx

  42. hi chiane will be thinking and praying for you lots. keep on fighting you are a brave girl .
    dan davis

  43. Dear Chris and Andia. I wish to thank you for your courage to work through your pain in the public eye. All you have spoken about, questions, your emotion and reactions I am going through presently. It was like re-living the past 4 weeks of my life. We are in Toronto, Canada, and my six year old son Jacob was diagnosed with sPNET April 27, 2012. He will be following the Saint Jude’s protocol. Starting with radiation Wednesday. I will be following your story and will likely start one of my own. My prayers are with you and your children. We are an ocean apart but connected by the love of our children. Rob Apap.

  44. WOW! You guys are doing an awesome job. My name is Shawn Byrd of Indianapolis, Indiana, USA. Our son was diagnosed at just 4 and a half months after having a seizure that led to a CT scan. His name is Talon Byrd. He gave SPNET a hell of a fight, but lost the battle on FEB. 8,2012 at 22 months old. I am still trying to heal fore a piece of me died with him. I am determined to continue his battle for the children who still have a chance. I am not 100% sure yet on what my next step will be, but if their is anymore than to share your story that I can do to help your battle please let me know. I would love to get involved. Though we are miles apart, we are fighting the same war! Their are links to Talon’s story here.

    Much hope and love from the Byrd Family
    Brain Cancer Awareness from the Front Lines

  45. Hello my name is Beth, your story has touched my heart and you are such a brave little girl !! So I thought I would do some fundraising events as I can. I decided to do a run wih 10 of my freinds and yesterday we succesfully completed it, we done 2 1/2 miles !!! I am hopefully doing a cake sale soon at my school as well to raise even more money. I will tell how much we have raised when I have the finall result. KEEP FIGHTING CHIANE !!!! love Beth xxx

  46. Yvonne Smith

    God Bless you Chiane! And remind your parents of the powers of lekker cup of Rooibos Tea! It might not be a cure, but it always uplifts ones moods and makes you feel better. We pray for you and your family!

    Yvonne, Warren & Saskia

  47. hello my name is emily and at our school we are doing a cross country run to support your charity

  48. Hiya Chiane
    Your a superstar we saw you on tv the other night. Everyone from The Indee Rose Trust hopes that you are still smiling your way through your treatment and we all think that you are so brave. Tell mummy and daddy we send them a big hug xx maybe we will come visit you when we are up gosh visiting some other very brave children just like you. Will have a cuppa with mummy. Here is my email if mummy wants a chat. Hope to see you soon flower xxxxx Jane and The Indee Rose Team xxxxx

  49. vikkilouise1

    Hi, we are a chairty that sends cards, letters and gifts to seriously ill children and their siblings. I wondered if you would like Chiane to receive some happy post from us? Our website is (we are in the process of moving to our new one). If you would like her to please drop me a line on
    Best wishes, Vikki

  50. Hi Chris,

    I have just became aware of the fight you as a family are fighting. My prayers are with you and especially with Chiane. I had a grandson who died at the age of 4.6 years due to medulla blastoma. During our research we came across this YouTube video which I would like to share with you. Maybe this may trigger something? Opening Clip – “Burzynski” – Cancer – I really hope and pray for you as a family.

    Linda Rensburg

  51. hey i have some people on twitter that are keeping up with wot is happening with you so thats good the more the better eh ! hope you enjoying your time at home bless and i bet your brother is excited your home hehe x

  52. Dear Fairy Princes Chiane, Fairy Godmother here. Hooray for you!!!!! Everyone has been cheering for you, but you were the one that did all that hard work to make it through all your treatments. You are still my hero. Play, sleep, and eat the good foods. I think about you all the time.
    Love y’all!
    Aunt Barb in Texas, USA

  53. So good to see Chiane’s doing so well after all she’s been through. I knew the alternative treatments would heal her much faster 😉 – thinking of you all, all of the time, from Michele x

  54. hi missus you are doing brill unfortunaly my dad passed away but he lived his full life and you still got all your life ahead of you and my dad stayed strong through all you children so thank you for showing him courage and strength with love zena xx

  55. Barbara J Masterson

    Dear Fairy Princess Chiane, Fairy Godmother here. I just wanted you to know I am thinking of you tonight. You certainly have more people loving you than any other 6 year old I know! May you have a blessed Easter morning.
    love to y’all!
    Aunt Barb in Texas, USA

  56. John Whiteley

    Hi Chiane and family,

    Do you remember the little boy about your age that was in the bed next to you in Parrot Ward high-dependancy all that time back in July last year? – you were very kind and came and visited us in his room and coloured some lovely princess pictures for him. Well Laughlin has been visiting some of the same places as you – Lion and Elephant, UCLH for radiotherapy – but we havn’t bumped into you again, though we have thought of you often.

    We are so pleased that we have finally found this site, and to be able to hear a bit more about the ups and downs of the past 9 months of your life – it sounds as if you have been wonderfully brave through it all. Lockie has wigglies and a PEG like you though he is not very keen about anyone touching them. He is feeling pretty well at the moment, and continues to be mad about pirates and egypt.

    Chris and Andia – thinking of you both, and hoping you are coping ok with it all, particularly the complication of juggling the needs of a very unwell 5 year old with the regular ones of a 2 year old as our youngest, Gus is also 2. It is a pity we have not crossed paths again since surgery – if you would like to see what has been happening for Lockie, you can see our journal at We will be putting a post on there to point our familiy, friends and supporters to your site as there may be some who would like to donate directly to help Chiane.

    Thinking and praying for you all this Easter – we are praying for Laughlin’s healing on Easter sunday at a Celtic chapel on the coast of Essex and will hold Chiane in our prayers as well.

    With best wishes and love,

    John, Andrea, Laughlin and Gus

  57. Barbara J Masterson

    Oh, Dear Fairy Princes Chiane! Fairy Godmother here. I was so happy when I read the reports from you and your Daddy. I have been thinking of you every day. I thought you would be in isolation like last time. I know getting well after chemo is really hard work,even when it is better than last time. You are still my hero! I am carrying you and your family in my heart and praying for you every day. (Sometimes even more than once!)
    Love, Aunt Barb in Texas, USA

  58. Hi Chiane,
    I used to work at DG with Dustin, that’s how I came to find you. Its 2:37am and I am glued to your facebook and webpage, I am hoping and praying it wont be long before you are tapping on a computer, updating us, loading photos of you having fun and making beautiful things. You and your family are always in my thoughts – get better soon bat girl (love that your brother was a Tinkerbel 🙂
    Emma xx

  59. Barbara J Masterson

    Dear Fairy Princess Chiane, I was just thinking about you, and when I checked my email there were updates from you and your dad! You are so brave, and are working so hard. Are your leg muscles stretching now that you can jump on your trampoline? I bet ot is easier to do exercizes when you are playing with Estian. I cheered out loud when I read that your blood is doing better! I’m sending lots of bitterfly tickles and kisses. Oh, and lots of love to y’all.
    Aunt Barb in Texas, USA

  60. Barbara J Masterson

    Dear Fairy Princess Chiane, Fairy Godmother here. I have been watching the updates from you ans your dad. Sometimes I cheat a bit, and ask your friend Theresa. I am praying that the new-old plan with platelets works, and that your platelets go up. I am really glad your mood is good. Your daddy says you are keeping busy. Are you painting any pictures or making more puppets? I
    Ike seeing pictures of things you have made. Are you teaching Estian how to do these things? I love y’all, and hope to meet you sometime soon.
    Aunt Barb in Texas, USA


    Chiane, you are an amazing little girl. Would love to meet you one day as you and your wonderful parents are an inspiration to all. Keep up the good work. I love all your new photos, thanks for sharing them. God bless xxx

  62. hi there chiane glad you are able to hve some time at home with your family thinking of you and my lovely dogs would be hpy to meet you when you are well lots of love jane your doggie nurse from kingfisher ward xxxxxxx

  63. Martha Coleman

    Just thought I’d let you know that I held a Krispy Kreme Sale last week and myself and about 10 of my friends managed to sell 35 boxes (dozen in each) of doughnuts and we raised £310!!! I sold them at Dame Alice Owens and at 1st Grange Park Girlguiding. Even if people didn’t buy a doughnut they still donated as they were astonished by your bravery, especially for a six year old!

    Keep fighting Chaine!

    I will keep praying, fundraising and telling everyone your tale (I regularly get asked for updates from friends and relatives!)

    From Martha (Ashmole Phoenix Gymnastics)

  64. Symoné Adeyemi

    Hello Chiane and family,

    My name is Symoné and I have heard so much about you from my mum Sheila and aunty Abi and even have your webpage bookmarked so I can follow up on what is happening with your treatment. I really wanted to do something to help fundraise for your treatment so together with my big brother, Daniel, and my friends Oyinlade (7), Aimee, Darcy, Kerry (11 yrs), we organised a cake bake and sold pretty cupcakes. The weather wasn’t too good that weekend but we managed to sell most of the cakes and raised a whooping £75:00! We are praying for you and hoping you will get better real soon. xx

  65. Barbara J Masterson

    Fairy Princess Chiane, Fairy Godmother’s feet are doing a happy dance! And my fingers and toes are pleased to be un-crossed. ( It’s hard to happy-dance when your toes are crossed!) I think I read that you have finished your first form in school. Over hear we call that first grade. I am so proud you were able to finish ahead of your classmates, even when you have been so sick! Sweet girl, you and your mommy and daddy and brother have been fighting so hard to keep you healthy through all your chemo and radio. Once more with the Thiotepa and I think you will be ready to come to Texas. Honey, I think you have worked so hard, I will award you a Black Belt in fighting cancer! I can’t wait to meet you and Estian! Love y’all!
    Aunt Barb in Texas, USA

  66. Barbara J Masterson

    Dearest Fairy Princess Chiane, Fairy Godmother here. I am so excited that you get to have visitors. Maybe I can fly to England on a big buttrrfly so I can see you. You have been so busy, I wonder if you have had any time for art work. I have all my fingers and toes crossed for good luck on your MRI report. It is only 2:00 in the morning here, but 8:00 in the morning there. By the time I wake up, maybe you will already have good news. I am going to try to dream about flying on that big butterfly. Love you, sweetheart!
    Aunt Barb in Texas. USA

  67. Barbara J Masterson

    Fairy Princess Chiane, it’s Fairy Godmother here. I heard that you and Estian are having lots of fun now that you are home. I enjoy reading new posts on your site, and sometimes I come to your site to look at your pictures even if there aren’t any new posts. Do you know you are one of my heroes? Sometimes if I am not feeling very well, I think about you. Then I try to be brave, like you are! I made some Mooney selling some things I made with Duct Tape, and sent that to your account. I hope you get to come to Texas soon! I love y’all!
    Aunt Barb in Texas, USA

  68. Hi, its Fatma from Azamay. We are all pleased to see Chiane doing well. We have some money at the spa collected for Chiane please could you come and collect it. My daughter’s school (Latymer)tried to deposit money they raised but were unable to do so, please can you confirm the bank details. Thanks

  69. hi
    my name is isobella i went to the rugby match to raise money for you . you also came to my school (lee chapel). i think you are the bravest little girl ever.i think your puppet is really good.
    love isobella xxxxxxxxxx

  70. So pleased your are starting to feel better .We have our maharaja charity night on Wednesday and still have tickets left.
    All money raised will be donated to Chiane.
    Its £15 a ticket and you will get a 3 course buffet meal, we have a live singer and disco.
    £8 we ticket will go to Chiane x
    Make it your valentines night out!!!!
    For more information contact Sarah 0773603613

  71. HI Chiane, Mum and dad. We are so glad to see you are feeling better. At our tuition centre we have raised an amazing amount of money with the help and support of the teachers and parents. But then today one of the mums e-mailed to say that her two girls both felt they want to do more, so they sold raffle tickets at school , doing a name the teddy and a cake sale today. They raised 133.91! How amazing is that. There are some truly amazing little girls in this world, and you of course are one of them. We keep you in our prayers. Keep up the good spirits, and keep those nurses on their toes!

  72. I read your posts everytime they post up and im constantly keeping people updated about you! You are so much braver than I would ever be…

    I’m having a cake sale a couple of weeks after half term and sooooo many people want to help out and support you! Keep strong beautiful!

    I’m praying for you!

  73. Hi Chiane,
    I am not sure if you will remember me- it was quite a while ago- but I used to help in your nursery, and babysat you and your brother (when he was just 4 months old) on christmas eve! You are such a strong and loving girl, I really do hope you have a speedy recovery and I am going to do all I can to help raise money so that you can go to Texas.
    Be strong Chiane! You can fight this sweetie!
    Sending lots and lots of love and positive thoughts,

    Maddy Rose xxx

  74. Hello Chiane and Family 🙂
    I’ve been praying for you every day and I’ve got all my friends in my Bible study group praying for you too!

    I am so pleased to see you are getting better, you had me worried for a while!! I’ll tell Dustin and Mon to give you all the hugs(when you are in the Elephant ward) I would have been giving you if I could come visit 😉 I would have loved to meet you in person but Dust tell sme so much about you so it feels like I know you already! haha!

    Keep up the good work, be strong and remember- we’re praying for you here from our little island 😀

    Lots of love ❤ ❤ ❤

  75. Chandraa and Milton

    Dear Chris and Andia:

    Our daughter Rhiannon goes to Tara with Estian. On 26th February she is turning 3. Instead of receiving birthday gifts we have decided to ask friends and family to donate for Chiane on that day. Hope that is ok with you.

    Best Wishes,
    Chandraa and Milton

  76. Barbara J Masterson

    Hi, Fairy Princess Chiane! Fairy Godmother here. It was so good to read your update today. Seeing your daddy as a princess, with bosoms made me giggle out loud. I am glad to hear you tried to wash your hair; I hope you scrubbed behind your ears. I can’t sit with my legs under me this way, either, but I can give you a thumb’s up with both hands! I took my little dog to the vet today to have her fixed so she can’t have puppies, or kitties, either. She is not having nearly as much fun as you did today. All she wants to do is sleep! I will try to send a picture of her.

    Honey, I am praying really hard every day for you to get well enough to come for treatment in Texas.
    Lots of love to Y’all. (Sometimes if we mean more than 2, we say “all y’all.)

    Aunt Barb in Texas, USA

  77. Hi there. We took my daughter to Burzynski in October and I’d really like to talk to you. We believe in what we saw there.

  78. hi chaine you most probably dont remember me i used to cook your meals and settle you to sleep most afternoons because you was my favorite. i am praying for you everyday and thinking of you all the time keep strong i know it must be hard but you are a strong girl and i know if you put your mind to it you can do anything . you still look the same i left the nursery when you were in the 2-3 year old room so i saw you be a baby and grow in to a little girl and it was always such a pleasure. i see you have a brother now and you look after and play with him so beautifully because you are and always will be a very special girl. lots of love to you your brother and your amazing mummy and daddy they are also very strong and you are lucky to have each other xxx stay stong all my love daniella xxx

  79. Hi, You have probably came across this information before but I still thought a good idea to mention it just in case 🙂
    It has been discovered that the tea from the leaves of the custard apple or so called graviola in Brazil, fruit helps reduce cancer and even get rid of it. My information at present is limited but it might be worth researching. They sell the tea in

    Just a thought. I wish you all the best and success in your treatment.
    Much love,

  80. Dear Chiane!
    Me, my daddy and my mom wish you a happy birthday. Hang in there it’ll be much better soon. I know you are very strong. I miss you. Get better soon so we can play again.
    Lots of love and prayers,

    Noemi and family.

  81. Morgane Monjauze

    Hi Chiane!!
    When I got the message, I nearly cried! Happy birthday! how old are
    You??? Don’t worry, you will be ok. I am doing a fundraising for
    You tomorrow so hang in there!!! I am 10, older than you and I could
    Not be able to stand the pain you are going through!!! Stay strong Chiane!
    I think your parents are AMAZING!!!! They are doing everything they can!
    I will write again soon!
    Stay strong sweet girl!!!

  82. Hello
    My sister goes to Kipmagrath in Shenfield. We have been raising money for you
    You’re very brave!!!!!!!!!!!!!! Were trying to think of more ways to help you raise money.
    I’m thinking of you lots with all my heart
    love Lottie (8) and Emily (10)

  83. Hi there,

    My name is Kani and I heard so much about you from Allan. You are such a brave and beautiful young girl, i am going to raise some money to help and hope I can raise a good amount too. I have looked at some of the photos it does seem like you enjoy painting and making things. I am also an artist who enjoys painting and I can see a talent there young lady keep it up. I will look forward to seeing more 😉
    I hope you are feeling better sweetheart and I look forward to keeping in touch and seeing your progress.


  84. Hi Chiane,

    I am friends with Emma and Anika. I have heard a lot about you! I have asked the headteacher of my school if the school can raise some money to help you go to Ameria for the treatment. My tooth fell out and I told my tooth fairy about you. She said you are a brave strong little girl she will be watching over you. My friend Abbie’s dad is running the marathon for you. Abbie hopes that you get better soon. I hope you get better soon.

    Love From Zoe xx (age 9)

  85. Hi Chiane, just been looking at your pictures of you with your art, I love the Lizard. We have 2 pet Tarantula’s but they aren’t as colourful as your lizard. Stay strong it is a wonderful feeling to hear you are feeling better after the chemo.

    My daughter Zoe asks about you all the time and she even wrote to her tooth fairy asking her (her tooth fairies name is Sugar) if she knew you? Sugar wrote back this week when she collected one of Zoes teeth, and guess what she said? She has heard of you through one of her fairy friends and all of the tooth fairies are looking out for you.

    Stay strong princess and know that the all Tooth Fairies are out there willing you to be better soon x

  86. Hiya, My name is Shan and I live in North London, I read about your story on facebook. Your story has really touched me and my little boy so much, and I would like to help you to raise funds in any way I can. I make cakes for a living so if you are doing any events in London, Essex or the surrounding areas where you think a cupcake stall might do well then please let me know and I will come along ( with as many cupcakes as I can possibly fit into my little car!) and will donate 100% of any profit made to your cause. Good luck guys, thinking of you. X x x x

  87. Barbara J Masterson

    Fairy Princess Chiane, Fairy Godmother here again. It’s the middle of the night here. We are having a big thunderstorm that woke me up! I was reading some of your diary and was lookomg at some of your pictures. There is one of you sitting in the blue dentist chair, and I want you to know 2 things. First, the chair looks like ablue angel holding you in her lap. Can you see her haloover your head and her wings at your sides? Second, I can NOT cross my legs I to a pretzel like you did there! That would take more magic than even I have!
    Love all of you! (In Texas, we say “y’all “)
    Aunt Barb in Texas, USA

  88. Prayers and thoughts are with you all. Chiane you are the bravest and most courageous little girl in the whole world. I am so pleased you are feeling better. I am new to this website but I will be following your progress daily. Keep strong Chris and Andia, you are amazing people. May god’s angels be with you every step of the way.

  89. Barbara J Masterson

    Princess Chiane, Fairy Godmother here. You are so strong and you are fighting so hard? I am very proud of you. I’m also proud you have learned to ask for help when you need it, like with pain medicine. I just figured out, you mut be part fairy, too. That makes you a fairy princess! Oh, when I called Grandma Rogers in Kentucky to tell her how well you are doing she was so happy. She is another one who is praying for you every day! I think it will only be several weeks more before I might get to meet you in Texas.
    Love to you and your family!
    Aunt Barb in Texas. USA

  90. Hi Chiane, it’s great to see you looking so much better.
    I love your hand puppets are you going to put on a show?
    What fantastic painter you are, the lizard looks great.
    Keep fighting x you can do this xxxx

  91. Hi Chris and Andia , you are certainly the world best parents, my prayers always for you and the little precious princess xxxxx

  92. Hey everyone me and my family are holding a Fund Raiser tomorrow for my daughters best friend Chiane Cloete who is only 5 years old and has a rare brain cancer, she really needs to get to America for special treatment so please come down and help us Raise some money to get her another step closer to getting the treatment she desperately needs!! We have great prizes to be won and loads of fun stuff for the whole family!! so come and join us at 12PM onwards at the EMB CLUB ROOMS , LANCASTER WEST W11 1TQ. Chiane Cloete is a true Princess who is being so brave right now! im so proud of her. ♥ ♥ ♥ ♥

  93. Morgane Monjauze

    Hi, Chris,

    My name is Morgane, i am 10 years old.
    Chiane is soooooooo brave!! I think of chiane every
    Day! She is so bright! I could not do what your
    Daughter is doing! On the inside, she is as strong as
    A lion!! If I could I would stay up day and night to help you!
    I made a ball ball out of paper and wrote something to chiane and
    Hung it on the Christmas tree, I also did race for life for your daughter!
    Just to tell you, chiane is so cute and able!
    You are an amazing parent! I wish chiane all the best!
    Morgane Monjauze

  94. Barbara J Masterson

    Hi, princess! I wish I were your fairy godmother. the large, economy size; bigger bang for your buck!) I would help you find your way to magical kingdoms inside your head when things get rough. We could decide if we wamr it to be summer, and what flowers and birds might be around. I think you would be a hero princess. You would ride on a pony and carry a big sword to kill monsters and dragons and the baddies inside you. You and the goodies will be the winners!!! When you come to Texas, maybe I can read you a big book about a little girl in England. It is called The Secret Garden. I hope to see you soon!
    Love you, Butterfly Girl.
    Aunt Barb in Texas

  95. hi my names natalia evangelou. When i heard about Chiane i got goosebumps!! i cant believe whats shes been through and shes only five! i heard about it through my friend Christina Komodromos. I have been following your website and twitter ever since and me and my friends at school are working on a fundraiser to help Chiane overcome this. Your little beautiful girl is so amazing and brave she always has a smile on her face. Even though i dont know your daughter i fee as if ive known her all my life. Stay Strong Chiane!!! xxxxxxxxxxxxxx

  96. Stephanie Clifford

    Chiane, u dnt know me but i think u r such a brave young girl and u have had to put up with so much but yet u r always smiling, i really hope the treatment works and the money can be raised for u to go to america and have the surgery u need. Always in my thoughts and prayers keep fighting
    all my love steph xxx

  97. Hi Chiane
    I wanted to write you something nice about how Jesus really loves children, but I just read your diary (14 January 2011) and I have learnt more about Jesus from you than what I could say with a thousand words! God has made you very special, you are the bravest kid I have ever seen. My son Riaan is 10 and he talks to Jesus every day. I will ask him to join me to pray for you.
    May God keep you and hold you and remind you of His love for you, now and forever!

    All the best brave soldier!


  98. These last few entries about Chaine’s prognosis and what she must go through has been very difficult to read. My own 6 year old daughter Supatra is going through her own fight and has been on Burzynski’s treatment since Sep 11 and I therefore no the pain of the decision process you and your wife have ahd to go through. Chaine is a strong little girl and I pray that everything will work out in her favour with as little discomfort as possible. Supatra wishes her well and hopes that she will have the best year ever.

    All the best from my family to yours and be strong Chiane…


  99. Emily demosthenous

    Dear chiane and family
    I am a 14 year old girl who has read into your story a lot recently and now determined to help you raise all the money. As said by christina and Xenia below, we as a group of friends are at the moment convincing the school to help with fundraising, it may not be much but I hope our contribution may help you! We pray and hope you fight this. Your a brave young girl!
    With all my love and hope to you and your family
    Get well
    Emily demosthenous

  100. christina komodromos


    My names Christina ( Martha’s big sister from Tara Kindergardens Nursery, Despina’s Daughter ). Chiane, me,my friends and family are praying for you everyday so you keep strong and fight because we know you can win this! Myself and my friends (Xenia, Natalia, Emily, Pooja, Nadia, Halayna, Zoe) are currently in the process of planning fundraisers for you (as Xenia mentioned below) and we wont stop until you reach your goal. Your so incredibly strong and are an inspiration to many. Faith will guide you so hang on in there gorgeous. Please keep updating!

    Endless love,

    Christina Komodromos

  101. Hello,

    I’ve been keeping up with the website for a couple of weeks now, and I’m so proud of Chiane, she is one brave little girl. I’m 14 years old and I look up to her and pray for her to get all the help she needs everyday. Me and my friends are currently in the process of convincing our school to let us do a fundraiser to raise money for your beautiful daughter. When one of my best friends Christina informed me on Chiane’s story, we set our hearts on helping her in any way we could!
    Chiane you are a true inspiration, and we pray for you everyday.
    Thankyou for being so beautiful.
    With all my love,
    Xenia Miltiadou.

  102. We think about you all everyday, and hope with everything we have that your body can be strong enough to keep fighting. Zoe (9) is meeting with her Head Master today to ask if he can organise some fundraising in there school (it is great to see her wanting to fundrsie like me).

    I have collected some more money yesterday from my friends at work and another friend of mine has a London Marathon place and I think he will be running and raising money for you.

    Be strong today little princess
    Alan, Julia, Zoe & Ewan

  103. Barbara J Masterson

    I am thinking of you all. I am ready to go to sleep and you must be nearly ready to get up. I put a pack
    age in the mail last Thursday for Chiane and Estian. This is a little after-Christmas present. I love you soL
    much! I hope to see you soon.
    Aunt Barb in Texas, USA

  104. I have just read your story and am deeply touched by it all. Being a father of two myself I can only imagine what you all must be going through.
    All I can say is be strong and if there is anything I can do to help raise the profile or proceeds then please do not hesitate to contact me.

    You are a true inspiration and a fighter and my thoughts are with you. Be Strong and Fight,Fight Fight !!!

    Lee Jones
    Wrexham FC

  105. I have just read your update and truly feel for you all. As a parent I cannot begin to imagine what you are going through. You are having to make such heart breaking decisions. I know if an Anatomist in Edinburgh that I think you should contact. He knows A LOT about A LOT. It is worth giving him a call and seeing if he can think of anything else you could try. His name is Dr David Robinson 07964483362. I pray that God hears your prayers and gives you more time with your precious little Angle. xxxx

  106. Thinking of you all on this New Year’s Eve. We have a little more than 90 minutes to wait, and it’s already been 2012 for 4 1/2 hours in London. I am praying for all of you in this coming year. Celebrate every day you have together, and live with no regrets. I love you all, and hope I get to meet you in the States.

  107. Best wishes and prayers for Chiane’s speedy recovery. I have just sent a small contribution to help with Chiane’s treatment.



  108. Tara Wright-Hemlock

    Oh, baby girl. Your story breaks my heart! Please consider checking out this link: Tell Terry and Dr. Garcia that Tara Hemlock sent you. You’re on the right track with trying to get an immune response, but there’s an easier, more effective, less invasive, and much much much less expensive way! Please take just 5 minutes to check out the newest in PDT. God bless you and your family.

  109. sonay and lelani

    Hi Chiane,

    Well done, your doing really well. Ayla and Lelani from school would like to come and see you. If this is possible please reply back when its convenient for you.

    Keep up the good work..

  110. ALL my love and best wishes go out to you all. I know what ever decision you make will be the right one. If love and support are any help at all, then everything will definitely be ok because you surely have so many people willing you to get well. I hope that you can steal back some happiness for the Christmas holidays. Maureen Howard x x

  111. Hi Chiane,

    You are doing so well 😀
    I was wondering have you thought about going on radio as well to let people know.
    Good luck with everything.


  112. Saw your posters at Hatfield Sports Centre yesterday (your Dad is doing a great job!) and enjoyed the cakes which were there. You are a very brave and beautiful girl and I just wanted to let you know about the Lions and Leos who raise money for local charities. I used to be very involved with the St. Albans Leos but unfortunately am away at university. I have sent an email to the club with your details but your Mummy and Daddy should look up the local clubs on the internet and contact them as they are always looking for local people to help. They may also be able to help with any fundraising events.

    If there is anything I can help with please drop me an email.

    Remember to keep smiling 🙂

    Flic xxx

  113. Hi Chiane and family
    I’ve sent you a small donation, with love, from my family to yours….if I had all the money you needed it would be yours in an instant, much love and blessings x

  114. hello, I work in public health in london and have put your link out so maybe others will contritube. I have donated £60 instead of cards and gifts to a few select people who i know will appreciate it.
    Best wishes
    pat grey Croydon

  115. I have you on my facebook page! my freind Dyffed sent round an email to everyone at college about you! come to GNC camp – they may be able to help – Don, Steve and Anne Double – now called ‘the edge’ camp….contact them they are lovely and am sure they will help you! Anne Treeby

  116. Hi Chiane, a freind of mine told me that your Dad called at his house looking for sponsorship (i am at Oak Hill college too) – my froend Dyffed sent out a general email asking people to support you guys fiancially and prayerfully – so am trying to look at doing both – I have put a link on my facebook page so others can see it! hope you see answers to our prayers…. God bless, Anne Treeby

  117. Tollie O'Reilly ( cloete )

    Hi my BUTTERFLY, this is ouma Lulu from Louis Trichardt, in South Africa. Ouma mist you , Estian ,daddy and mommy a lot. You are a brave girl, always smile and thumbs up. Ouma Lulu watch daddy on the internet walking the 25miles for raising money for your treatment in the US. Ouma was crying the hole day till daddy was finished . I know GOD was carry daddy the hole time, just like you. It is winter and very, very cold there. I feel soooo sorry for daddy and his friends that was walking with him.  Ouma Lulu is so proud 2 say that Chris is my son and your daddy. Ouma Lulu know that all of you are mentally, physically and spiritually  copeing. See you next year in July 2012. all my love, and kisses.OUMA LULU

  118. Hallo Little Angel,i’m sure every thing its gonna be all right,i left a little help4you,&4your family(i’m sorry4my english…but i’m italian) Double Kisssses Chiane.Ci@ooo

  119. Hi chiane
    Glad to hear you are feeling better, i hope you remember martha from Taras kindergartens shes in the same class as chistos now.
    I showed her your picture and she said thats chiane !
    Chiane always had something to say whenever i was at the nursery , she was fiesty then which shows her fighting spirit today
    Send my regards to your wife as well and to have faith a lot of people especially parents are feeling your pain and want to help.
    I also have an older daughter who has sent a link on facebook to 750 of her friends to spend online to donate .
    she has also been in a meeting with a club promotor to have an event to raise funds, it will probably be around late jan to get the maximum funds.
    My thoughts are wjth you all
    Mrs Despina Komodromos

  120. Good luck Dad with the walk on Saturday. Life seems so unfair sometimes and we hope and pray that Chiane makes a full recovery

  121. Im sorry to hear about this.First off I want to share with you that this is not the only option.We are Alkaline by design and Acidic by function.We as humans all have a PH Balance.If its Acidic we get sick with many different things Cancer being one of them.Dr Robert Young is on Facebook and can be reached that way.Drugs are not good for the body regardless

  122. Hello, we have just read about your little girl and would like to help. We are familiar and are working with similar families to help fundraise during these difficult times. We are very much aware of Dr. Burzynski’s amazing work. We have a sustainable fundraising strategy, which can help boost Chiane’s funds, which involves the community you are working with giving what they can. We are working on branching the strategy nationally, and would love to share with you more. Please be in touch, so that we can share with you the flier which we have created and share with you more of how to boost your funds, in a major way. All the best.

    Yours In Empowerment
    Anthea & Christy

  123. Hi, I co-run a charity, Chelsea’s Angels and we might be able to offer financial help for your appeal. If someone could email us at so we can get more details. Take care, Michelle

  124. We have donated £150 raised by Gemstones Gym Club on Saturday. Good luck with the treatment.

  125. Keep strong, what an amazing family you are!!I saw your story in our local free Essex Business and leisure magazine and have just donated, joined both facebook pages and posted the website details on my Fb page. Keep going, you will get there!!!
    Lots of love and good thoughts from Tracy Bullock

  126. Miss Susyn Northwood

    I am a neighbour of Julia Barlett. She e-mailed your story to me. Today started like any other Saturday. I am 53 with a grown up son and 4 Grandchildren, they live about 40 miles away and as I don,t drive I don’t see them as much as I would like. I also have a rare tumour which was diagnosed in 1998 and operated on in 1999. I have injections every month to keep them small and even though the main tumour is out I am still a timebomb waiting to go off, every day is a battle, I am telling you this to give you some insight to how, in a small way, I understand at first hand how difficult and painful cancer is. Anyway as I was saying, today started as any other day until I read the message from Julia. I have spent the last 2 hours reading your website and watching the videos of your beautiful family over and over. The last time I cried uncontrollably was at my fathers funeral. There is so much I want to say, but they are only words and you need money. At this moment in time like so many people I am finding it hard to make ends meet and also before christmas with 4 grandchildren its not easy, but I promise in the New Year I will send some money which wont be much but I hope it helps. If there is anything else I can do then please let me know. Life is so precious and every child deserves to grow. I will pray for you. X

  127. Hi Sweetheart,This is Tenille’s Auntie,Tenille is missing you so much she always talks about you being her best friend and my sister Danielle has told me how brave you are being and what fantastic parents you have keep smiling you are truely amazing x x x

  128. Hi Beautiful this is Tenilles Mum , Tenille misses you at school so much she talks about you everyday , we cant wait to see u and bring you all your presents princess ❤ your truly amazing we are all so proud of how brave u are being!!!! will we do all we can to help raise the money to get you to America sweetheart!!

    To Chiane's Mum & Dad
    Wow you are two amazing people!!

    Lots Of Love


    Danielle , Karl & Tenille xx xx xx xx

  129. Hello Chiane, Hermann 2 goes to nursery with your brother, we are helping you to get the money together to go to US for treatment.
    We went to Winterwonderland today and we printed out flyers which we handed out. My mommy got going at her workplace to get donations
    Hope we will get to the £130.000 quickly
    Be strong and fully recovery
    hermann and mummy

  130. Good luck with all that you face – never give in ! DERRY

  131. Hi chris,

    I am writing to you from Walvis Bay Namibia. I am employed by TBN Namibia. Little Chaine’s name was noted on a special prayer request which we laid before the feet of our Savior, our Lord Jesus Christ. We will keep on praying because He is Jehovah Rophe!

    Some life giving scriptures.
    1 Peter 2:24 “He personally carried away our sins in his own body on the cross so we can be dead to sin and live for what is right. You have been healed by his wounds!”
    2 Chronicals 32:24 “About that time, Hezekiah became deathly ill. He prayed to the Lord, WHO HEALED HIM AND GAVE HIM A MIRACULOUS SIGN.”
    Romans 4:20-21. “Abraham NEVER wavered in believing God’s promise. In fact, his faith grew stronger, and in this he brought glory to God. He was absolutely convinced that God was able to do anything he promised.”
    Romans 5:1-2 “Therefore, since we have been made right in God’s sight by faith, we have peace with God because of what Jesus Christ our Lord has done for us. Because of our faith, Christ has brought us into this place of highest privilege where we now stand, and we confidently and joyfully look forward to sharing God’s glory.”
    Jeremiah 29:11 “For I know the plans I have for you,” says the Lord. “They are plans for good and not disaster, to give you a future and a hope.” (KJV says: …to give you an expected end!)
    John 1:1-5 “In the beginning the Word already existed. He was with God, and he was God. He was in the beginning with God. He created everything there is. Nothing exists that he didn’t make. Life itself was in him, and this life gives light to everyone. The light shines through the darkness, and the darkness can NEVER extinguish it.”
    “John 4:10 Jesus replied, If you only knew the gift God has for you and who I am (the great I AM), you would ask me, and I would give you living water.” John 10:10 “The thief’s purpose is to steal and kill and destroy. My purpose is to give life in all its fullness.
    Romans 8:31-32 “What can we say about such wonderful things as these? If God is for us, who {what} can ever be against us. Since God did not spare even His own Son BUT gave him up FOR US ALL, won’t God, who gave us Christ, ALSO give us EVERYTHING else?”

  132. Chiane, I don’t know you, but I’m happy to help get you on that flight to the USA. Be brave & have a fantastic Christmas, wherever you are.

  133. Hi chiane I will do what I can to help you. My sister works with dustin at dg that is helping you with your fight. This is how I know all about you and your dads hard work on facebook. I have donated and will donate again and will continue when I can. I will keeping spreading the word for your family. Lets have faith in the human race to help each other 🙂

    Lots of Love emma xxxxx

  134. A friend at Oak Hill college just told me about Chiane. Please be assured of our prayers for you all. We pray not only might the Lord graciously heal Chiane but that your faith in Him might be deepened and strengthened.

  135. Hi there, I heard of your situation through a friend at Oak Hill College. I shall be praying for you all! Just wondered if you had heard of St Jude hospital in Memphis, Tennessee? I have good friends in Memphis, and they told me about it, it’s a children’s hospital that is world renowned, and does lots of work with children with cancer. They do a lot of research, but the other reason I mention it is that as far as I know, they try to make the cost as minimal as possible, and even have places for families to stay in the hospital with the child! The website says that they will never deny treatment to a child because of inability to pay. Just wondered if it was worth looking into.

    God is good, and He will never leave you. He will be with you. Keep trusting Him. I am praying for you all.

    God Bless


  136. A friend at Oak Hill College mentioned your situation, please be assured of our prayers. We had a daughter who was critically ill last year, we found Psalm 121 to be a great encouragement, knowing that the Lord who made heaven and earth was watching over us was a great comfort throughout our time in hospital. We pray that this Psalm will be an encouragement to you as well.

    Love and prayers,
    Nick, Dorothy and Bethany

  137. HI Chris,

    My daughter Cassie goes to school with Estian.
    I have asked my employer to make a donation via their Charitable committee, which they have.

    I’m sure in no time you will reach the target, if i can be of any assistance please let me know.
    My thoughts are with you at this difficult time,

    Love Heidi & Cassie x

  138. Gemstones Gym club will be sending our proceed from our Annual Awards and display event.
    Good Luck with your treatment
    Gemstones Gym Club

  139. hey im your neighbour samantha`s sister, when i came to visit i was always popping my head over your fence and watching you and your brother play and spoke to your mum , and the last time i came up was when you had just got the puppy he was so cute 🙂 and i thought you and ur brother are so cute too x. you are one big brave girl very well done to you keep it up xxx i have donated i have also sent this message to all on my face book hope you have a speedy recovery xx

  140. Hello to the bravest and most lovliest little in the world! We all love you sooooooo much. All you need to do is keep smiling and giving the bestest cuddles and we will do everything else to get you better. I can’t wait to see you again so I can give you some more difficult word searches. All my loves always, your new friend Maria xxx

  141. Hi Chiane

    You are a brave little girl and Jesus is watching over you. I heard your story in church yesterday and have been telling people about you. Our family donated some money yesterday and I believe that some of the people I have told about you are also praying, donating and “spreading the word”. You and your family are in our prayers and keep on being positive. You are a motivation for so many people out there.

  142. Hi Chiane!! when i wached that video i felt sooooooooooooo sorry for you! you are so brave! i could never be as brave as you! i do gymnastics with sophie!! one day you may become a gymnast! just wait for that day to come!! i will do all i can to help! i will donate soon! you are the cutest, bravest, little girl i know! feel better soon! All my love, Morgane xxx

  143. Good morning, sweet Chiane. It is early morning here, and already afternoon where you live! We celebrated Thanksgiving on Thursday. That is an American holiday. People get together with friends and family, and eat lots of turkey and other yummy food, especially pumpkin pie! During the day we think about everything we are thankful for. I am so thankful that you are such a brave fighter and made it through radio treatment better than most adults do. Am sending you a bunch of pretty imaginary butterflies to help you celebrate. It is supposed to be very lucky if a butterfly lands on you. When you are feeling stronger maybe you could color some butterflies. I love you and your family and hope I get to meet you soon, when you come to the United States.

  144. Dear Chiane, it is Sophie again. I just wanted to tell you that before christmas I am going to try to raise money for cancer reaserch. I am doing this as I think it it important they find a cure for it. One day I would loe to meet you as you are very brave and inspirational and you are very strong as I could not have done what you have done. I give you all my love and support along the way and you will beat cancer one day.xxxxxxxxxxxxxx

  145. Hang in there Chiane! We are a family living in Virginia in the US. Our daughter Ellie was diagnose with S-pnet in April 2008 when she was 5.5. The tumor was the size of a softball. She received treatment at St. Jude Children’s Research Hospital in Memphis, Tennessee. She is cancer free and doing well. You will be too! If you want to read more about Ellie you can check out her site below.

    All the best – God Bless you!

  146. Hi All,

    I was made aware of your cause over the weekend and have made a small donation. I have also forwarded details of your website to over 750 contacts sitting on my linkedin,facebook and twitter accounts and aksed them to also make a donation or at the very least forward the site again to their own contacts.

    It would be great if you could all do the same as this viral approach will drive more people to Chiane’s website and increase the propensity for more donations.

    Chris, – I would also urge you to get in touch with all of your sponsors who have websites and ask them to place a promo on their home page with a link to Chiane’s website. Again this will drive more visitors to the site. Adding the promo should only take your sponsors a few minutes to set up.

    Good Luck and hope that this advice helps.

    Kind Regards


    • I am a business person in Covent Garden and know Serge professionally. I would strongly urge you to follow his advice concerning the Website and the ability for it to go viral and thereby increase donations. Serge has advised my business in this regard, and his understanding of this area is second to none. Once again I strongly urge you to implement his suggestions. DERRY MULLINS

  147. Hi Chiane, here at Azamay dental Spa/medispa we have started to help raise funds for your treatment. I am liaising with Monika and will be doing various events to help. My son and daughter, Yusuf and Yasmeen with their friends at Latymer school will be holding a cake sale and raffles to help raise funds. They have got some wonderful prizes, signed Arsenal shirts, spa treatments, designer clothes etc. I will keep you posted on dates and event times. Fatma

    • They will raise lots of funds from a cake sale at Latymer-they always go down well! Me and my friends raised £400 from just one cake sale! Good Luck

  148. Hi Chiane, I’ve just given you a donation but am determined to find a way to raise more money for you! You’re a beautiful little girl and an inspiration to everyone for your bravery and strength! Keep smiling! Praying and thinking of you.
    Love Robyn

  149. stay strong little princess…..keep smiling that beautiful smile of yours,have been following your progress and so proud of how you have taken this in your stride.good for you special lady xx

  150. Hi chris, my little boy Tom goes to nursery with Estien. I would like to help you find sponsors too. My email address is if you would like to send me details of how people can sponsor you. Claire x

  151. Hellen van Devneter

    Andia & Chris.

    Ek het nie woorde vir julle nie. Maar weet net ons dink aan julle en ons bid saam met julle dat Chiane sal volkome genees sal word.
    Baie sterkte


  152. Keep growing strong, we are all praying for you. God bless you and may he comfort your family. Love hugs and big kiss.

  153. Dear Chris & Andia,

    I used to work at tara’s nursery and was a nursery nurse in the wise owls room, and used to look after Chiane at nursery, I was very upset to hear the news on Chiane and send my love to her! She is a wonder little girl and was always laughing at tara’s she is extremely strong and I can’t begin to imagine what it is like for you, I would like to help collect donations for Chiane and share this on facebook to help get sponsors! Wishing you all the best, Chiane is in my thoughts!

    Best wishes,

  154. I’m in awe of your strength as a family – particularly your beautiful little girl. I had a cancer diagnosis last year – I understand a little of what you’re going through. I’m sure you’ve already researched this, but immediately I wondered if you’d considered vitamin C IV’s for Chiane? My doctor (Dr Trefza) practices out of the Homeopathic hospital next to GOSH – just a thought. Sending you all massive amounts of love and strength. Nicola.

  155. Dear Ones, I just got a brief update from Theresa. I am visualizing God’s arms around each of you, giving love and comfort. “Faith, hope, and love abide, but the greatest of these is love!” My heart beats with yours. Love, Aunt Barb

  156. I will always have Chiane in my thoughts and prayers as i believe God will see her through and send his angels to be by her side. For by Faith God reassures us of what we hope for and gives us proof what we can not see. So i say with confidence that the Lord will be with Chiane (family) as he listens and hears our prayers.
    Could you let me know how i can help/sponsor or support anyway at all possible.

  157. Thinking of you all and hoping that Chiane keeps on fighting as she has been? She is an inspiration to us all…hope Great Ormond Street makes her better xxx

  158. hi i used to baby sit chiane when she was a baby my heart goes out to all of u, finking of chiane! sending all my love Susannah

  159. Graystar Garibay

    Hi sweetie,
    I’m your auntie Graystar in Texas and I am praying for you and sending you lots of love. I have faith with you and am proud of you for fighting like a lion. Roar! Keep on keeping on! Love you, Graystar

  160. Gymnastics is not the same without Chiane’s beautiful smile to greet us every saturday. Many of my friends at school and in girlguiding have been touched by how brave you all have been- your parents, your brother and of course you.- Get well soon Chiane, we miss you lots x

    Martha x

  161. A story of incredible strengh and courage. I will always have you all in my thoughts and prayers until I hear of a happy ending . Elisa

  162. Hello.
    Thinking and praying for Chiane. Our whole church is in fact. I work with Helen Nicolas, and we’ve all been thinking up fund raising ideas. For my part I have started a sponsored weight loss! Going to get sponsors for every pound I lose by Christmas. I will post it on facebook soon to get as many sponsors as possible.
    Keep up the fight lovely girl.
    Lots of love
    Arty Speroni

    • Hi Arty

      That is great! Please let me know how I can sponsor you.


      • Hi Dustin
        You can either send me your details to and tell me how much you want to sponsor me (per pound lost by cmas or a total figure), I’ll put you on my form, I will inform everyone how much I’ve lost just before cmas day, then I would suggest you actually donate on this website, there are several ways, bank, paypal. Thanks for the support.

  163. Thinking of you all at this difficult time. Not a day goes past without me thinking of Chiane and hoping for her speedy recovery x

    Michele x

  164. Antoinette Kriel

    Hi Chris,

    Im writing to you guys from South Africa. I cant even begin to imagine what your lives must be like, and how you cope with it all mentally,physically and spiritually. But all i want to say is you guys will be in my prayers everyday. Not only for a cure/healing for Chiane but also for a financial releave, and that God will strengthen and keep you guys during this time as a family strong and motivated.
    With lots of support and love from other people. I know God can make a way where there seems to be no way!! And by the stripes of Jesus we are healed. And God is able to supply all of your needs according to His glorious riches in Jesus. Thinking and praying for you guys.

    Antoinette Kriel

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